Friday, October 15, 2010

didn’t expect THAT!

Glorious weather…beautiful drive…awesome company…lush green fields…

Wait!  Lush green fields?  Isn’t this October??  I really didn’t think about it much, just expected to see harvested fields and dirt on this trip.  But I was surprised. 

As always, it was beautiful in Pullman.  The drive was great.  The boys were delightful and I had lots of time to think.  Lots of time to be awed by the beauty of God’s creation.  Lots of time to adjust my focus. 

Things aren’t perfect, but I sure feel refreshed.  LOVED driving back with Emily.  It has been great to catch up with her!  Her stay won’t be long enough, but we had such great conversation on the way home. 

Next time I head to Pullman, though, I”m taking my camera.  It’s just too gorgeous to skip pictures.  I learned that lesson today…

on the road again

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This is what we’ll see later this morning.  And again this afternoon too.  The boys and I are headed to Pullman to bring our Emily home for the weekend.  Can’t wait to see her…the boys are excited to see her dorm room and eat ice cream at the WSU creamery.   We’ll be back later tonight.

Thursday, October 14, 2010

:)

Today at school Ryan had to identify a picture and write the word on the line provided.  This was the picture:

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and he correctly identified it.  When I asked him to spell it, he gave me a HUGE grin and said, “One zero Mom.  Duh.”

Goofy boy. 

Wednesday, October 13, 2010

a Nick update and some reflections

Thank you for your prayers!! Nick is doing exceptionally well today.  He was moved to PICU on Friday night and spent the weekend on dialysis and oxygen.  Yesterday, they saw enough improvement to take him off dialysis and off oxygen to see how he would do.  He’s blowing them away!  All the catheters have been removed, oxygen—even at night—is no longer necessary, and Nick is smiling and laughing and playing hide and seek with his PICU nurse.  All signs indicate that he’ll be moved back to his ‘palace’ on the oncology wing sometime tomorrow!  Not bad, especially when you consider that the doctors told Pam to expect a 2 to 3 week stay in PICU!  We’ll take 5 days…

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Fall.  It’s a time that I love, with its glorious days and crisp nights, the renewing of friendships (on the bleachers at volleyball and in committee meetings) and settling in to a routine.  This fall, however, has been a bit unusual.  The weather has been just plain strange—as it’s been all year this year—and there’s not much of a routine going on here.  Sure, the little guys do school every morning and I teach preschool every Tuesday and little Emily comes to play every Wednesday and Thursday.  We go to volleyball on Mondays and Wednesdays and speech therapy on Mondays and Tuesdays.  And all that sounds routine, but for some reason it doesn’t feel that way.  I suspect it has very little to do with what we actually do and everything to do with the fact that all around us chaos, confusion, and hurt seem to reign. 

I tend to process the hard stuff by thinking.  I want…or maybe need…time to work things through in my mind.  This fall there’s so much going on that it’s hard to stay on top of it.  My nephew’s illness is hard.  Nowhere near as hard for the rest of us as it is for my sister and her family, to be sure, but wanting to help, trying to ‘be there’ for her without interfering, and helping my crew work through their feelings and emotions is a challenge.  Ryan, especially, has been hard hit by Nick’s hospitalization.  For some reason, seeing Nick in the hospital this time has awakened many of his abandonment fears, and it’s terribly painful to watch him return to nightmares and night terrors and abject fear when I don’t respond instantly.  I know it will pass, but in the meantime we’re tired.  Some of my children are walking difficult, painful paths, and it’s so hard as a mom to have to stand on the sidelines and watch.  My heart breaks for one, yet there’s simply nothing I can do.  My only option is prayer, and some days it doesn’t feel like enough.  I know it is, but it sure doesn’t feel that way!  A family close to us is dealing with the pain of loss.  A family in our small group is dealing with cancer.   All around is hurt and pain…and nothing seems to help.  It can start to feel a bit overwhelming at times.

So overwhelming, in fact, that on Monday night I put a VERY important piece of paper in the washing machine…and toasted it.  Totally destroyed it.  I had to email Jim on Tuesday morning and say, “Okay, just shoot me.  Clearly I have too much on my mind.  I’ve ruined our pass.  Do you think there’s any chance we can get a new one?”  Fortunately those in charge were gracious and that particular piece of paper has been replaced.  But I keep doing things like that.  And that’s NOT me.  Not usually anyway. 

In a perfect world none of this stuff would be happening.  In a less than perfect world, there would be time for me to process, to regain perspective.  I am so grateful for the little guys—they keep me occupied when I would instead be worrying.  But I’m still restless and out of sorts.  One of these days it will all get sorted out.  Know that in the meantime I’m still here even if I don’t post, trying to get enough quiet time to process everything, and working on keeping my focus in the right place.  It helps tremendously to keep some of these verses in mind.  Right now they’re written out in my journal and posted in my kitchen so that I can keep them in the forefront.

We have this treasure in jars of clay to show that this all-surpassing power is from God and not from us.  We are hard pressed on every side, but not crushed; perplexed but not in despair; persecuted, but not abandoned; struck down, but not destroyed……  Therefore we do not lose heart.  Though outwardly we are wasting away, yet inwardly we are being renewed day by day.  For our light and momentary troubles are achieving for us an eternal glory that far outweighs them all.  So we fix our eyes not on what is seen, but on what is unseen.  For what is seen is temporary, but what is unseen is eternal.  2 Cor 4: 7-10; 16-18

May the God of hope fill you with all joy and peace as you trust in Him, so that you may overflow with hope by the power of the Holy Spirit.  Romans 15:13

Oh yeah, the Ben and Jerry’s Vanilla Heath Bar Crunch ice cream helped last week too.  Now, if I could get another pint or two and a good backrub to go with it…that sounds heavenly!  :) 

And because it’s been an absolutely beautiful day with a fun trip to the pumpkin patch, I’ll leave you with some fun pictures of my favorite little people.

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Friday, October 8, 2010

drowning my sorrows

Can I just get some Ben and Jerry’s and eat it from the carton?   Definitely the drug of choice for bad days and excess stress.  :) 

Nick’s holding his own, but things are still pretty rough.   I spent the morning at the hospital with Pam and Nick, and had some fun with Nick’s big brother Ted.  It was hard but good, and I’m glad I got to go.  Now there are at least 2 people at my house not feeling well, which makes visits much more difficult.

So, ice cream anyone?  I’m happy to share…

Nick update 10-8-10

Things are tough.  He’s in some pain and there have been some significant (but normal and expected) complications post transplant.   I am heading to the hospital pretty soon—Jim is coming home from work to stay with my boys since Ryan has a sore throat and a temperature.

Please keep praying…

Wednesday, October 6, 2010

October

Dewy mornings…

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and a trip to the fish hatchery

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So much for trying to get a picture with all 3 of them looking and smiling at the same time…

Sunday, October 3, 2010

Nick update

Nick’s doing pretty well.  He had a bad first night, but keeping him on 2 anti-nausea meds around the clock seems to be helping.  His blood pressure stabilized and his pulse rate came up overnight after the transplant, which is very good.  I didn’t talk to my sister today, but when I talked to her yesterday Nick was up playing Wii in his room.  He’s not eating, and they expect a rough few days with the mouth sores that will likely kick in soon.  He’ll be on basal morphine for those, with ‘boosts’ from the pump available to him.  He has an NG (nasogastric) tube for his TPN (total parenteral nutrition) feedings, I think.  They don’t expect him to be eating by mouth for at least a while.  And, it will be a bit before he can take in enough calories on his own so he’ll remain on NG feedings for a while even after he’s eating.

Because it takes a few weeks for the marrow to engraft and start producing cells, Nick will likely be at the hospital until late October at least.  We’re all hoping and praying he’s released by Oct 21, his big brother Ted’s 11th birthday.  In the meantime, he needs to rest up and get ready—my sister Chris and her family fly out from Chicago on Friday to visit!  Hopefully Brent will also be home for the weekend, and we’ll have a ‘party’ visit to the hospital and spend some time together…if Nick’s up for us all.  We will definitely miss Hailey (work) and Emily (in Pullman) while Chris, Frank, Alec, and Sam are here.  :(

Feel free to check Nick’s Caring Bridge site for more updates!

Wednesday, September 29, 2010

transplant day, take 2

Meet Nicholas.  easter and flowers 021

He’s almost 8 1/2 now.  This picture was taken last year around Easter, about six weeks after Nick had a bone marrow transplant to treat his leukemia, and just about exactly his 7th birthday.  I posted here and here and here about his recovery.  Or go to his Caring Bridge site here and read his whole story from the original diagnosis 4 years ago til now.

Well, in April 2010, as Nick was set to be released from post bone marrow transplant follow-up, it was discovered that he relapsed.  Again.  And today is Day 0 once more.  Transplant day.  Today Nick is having a cord blood transplant, hoping and praying that it will once and for all kick leukemia’s butt.  The transplant itself is nothing big—‘just’ a transfusion—but it is HUGE in it’s impact. 

Nick will be in the hospital for a bit, probably another 3 weeks or more.  He has to stay until the new marrow is engrafted.  As things move forward, please pray for a swift, uneventful recovery!  This little family has been through a lot in the last 4 years (Nick’s original diagnosis was Sept 20, 2006) and while the road will not be smooth any time soon, it will be nice for them to return to some sense of normalcy. 

Monday, September 27, 2010

2 lessons

Lesson 1:  “Rejoice with those who rejoice, and weep with those who weep.” (Romans 12:15 NASB)  Doing lots of this right now…it may be time to invest in Kleenex.  I would love the opportunity to rejoice with those who rejoice.  Bring on your happy news!  :)

Lesson 2:  When asked to speak to the young moms at church, expect God to make sure you understand your topic.  Case in point—I was asked this summer to speak on the topic of productivity.  As I have thought and prayed about it and run my ideas past a few wise friends, one thing keeps coming up:  align your priorities.  And guess what?  God is making sure MY priorities are in order these days.   “And He shall sit as a refiner and purifier of silver…” (Mal 3:3 KJV)

Some time ago, a few ladies met in a certain city to read the scriptures, and make them the subject of conversation. While reading the third chapter of Malachi they came upon a remarkable expression in the third verse: "And He shall sit as a refiner and purifier of silver." One lady's opinion was that is was intended to convey the view of the sanctifying influence of the grace of Christ. Then she proposed to visit a silversmith and report to them what he said on the subject.

She went accordingly and without telling the object of her errand, begged to know the process of refining silver, which he fully described to her. "But Sir" she said, "do you sit while the work of refining is going on?" "Oh, yes, madam," replied the silversmith; "I must sit with my eye steadily fixed on the furnace, for if the time necessary for refining be exceeded in the slightest degree, the silver will be injured."

The lady at once saw the beauty, and comfort too, of the expression, "He shall sit as a refiner and purifier of silver." Christ sees it needful to put His children into a furnace; His eye is steadily intent on the work of purifying, and His wisdom and love are both engaged in the best manner for them. Their trials do not come at random; "the very hairs of your head are all numbered."

As the lady was leaving the shop, the silversmith called her back, and said he had forgotten to mention that the only way that he knows when the process of purifying is complete when he sees his own image reflected in the silver....

--Author Unknown

Seemingly unrelated, yet intricately intertwined…all for the purpose of a truer reflection of Christ.  Painful?  Yes.  Worthwhile?  Definitely!