Wednesday, May 29, 2013

revelation

We’re now 2 months post wheat free trial and still mostly wheat free.   The changes for Ryan are hard to ignore, and he is enjoying being ‘itch and ache free.’  The difference for him is significant enough that HE recognizes when he’s eaten wheat, so it’s easier for him to stick with it.  Of course, there are occasions that we can’t (or don’t) choose to be wheat free, and we’re seeing clearly that it’s hard.

Surprisingly, we saw something amazing with Logan this last weekend.  Because of the way our weekend went, we didn’t do any wheat free all weekend (and some of last week either!).  Logan had two full blown meltdowns over the weekend, and both Jim and I realized that we haven’t had any since early March.  The ONLY difference?  His wheat consumption.  Fortunately, it’s fairly simple to rectify, and I rather expect that our more mild mannered young man will be back with us soon as we are being much more strict about food consumption.  It’s much easier to do now, since I NEVER need to see another meltdown like those we had this weekend.  :\

Lots going on here…more soon, I promise.  With the girls here, things are a bit chaotic trying to keep track of all the schedules, finish up school for the boys, and manage the clutter that comes when college kids move home for the summer.  Emily heads back to Pullman in the next 10 days or so for summer school, and Tori heads back at the end of July, so (sadly) the chaos and clutter is short-lived.

Saturday, March 23, 2013

What about this wheat free thing you’re doing??

I’ve been asked lots of questions  and decided it would be easier to address them here for everyone than continue to type emails.  So…here you go.

Who is participating?

Ryan and Logan and me, for sure.  Jim, for the most part, since he eats what I fix.  Smile  Hailey eats some meals at home, but because she needs a sandwich lunch every day for clinicals, there’s bread in the cupboard for her lunch.  Her chips have wheat, and she’s free to eat cookies or whatever else she wants.  I’ve asked both she and Jim to be courteous of the boys and to be accommodating for the month.  They’ve been great, and our weekend in Spokane doing the hotel-and-dining-out thing wasn’t a big deal, in large part because they were willing to go along.  

Why 31 days?

Easy.  It is a full calendar month.  For the boys, who have dreaded this experiment, it was clear to see, with a predictable start and finish.  We’ve used these 31 days to work on the practical application of Phil 2:14 (Do all things without grumbling or complaining.).  They’ve been amazing!  As a bonus, they have earned $1 each week they go without complaints.  (They don’t get allowances, so I pay them for work above and beyond their expected chores.  This was a huge challenge, and some incentive to keep positive attitudes—their work for the month—was appropriate.)

What made you decide to go wheat free?

Ryan has, for years, dealt with significant eczema.  The ‘solution’ always has been to treat him with topical steroids.  When I took him in for his 8 year check up, the pediatrician (whom I ADORE!) looked him over and recommended that we start using a much stronger steroid cream since Ry’s eczema was continuing to look bad.  The only drawback was that his preferred prescription comes in an ointment (petroleum based product), not a cream.  I don’t know about you, but I’m not wild about slathering my child with a petroleum based anything on his largest organ (the skin) with the most direct route to bloodstream absorption!  Plus, the underlying problem with the ointment is that it treats the SYMPTOM, not the problem.  In addition, Ryan is dinky tiny.  His growth rate has been incredibly slow for years, and he sits at the very bottom of the growth charts.  He eats like a football player, and although it’s never been pursued, we have discussed the possibility of food allergies or metabolic disorders with his ped. in the past.  Changes to his diet seemed like the most reasonable option at this point, especially knowing that eczema is often present when allergies are possible.  Not knowing Ry’s medical history and background, we were working with big question marks.

So why wheat?  Why  not eggs?  Or dairy?

Simple.  Ryan can’t stand eggs and doesn’t eat them, so they weren’t a likely culprit.  The boys are Asian and as such more likely to be lactose intolerant, so we already monitor dairy consumption.  (Neither of them seems to have trouble, fortunately.)  As we looked at Ryan’s diet, it seemed more and more likely to be wheat.  One sign of potential food issues is cravings.  Ryan LIVED on wheat based products.  His idea of a great day food wise would be bagels for breakfast, macaroni (and cheese, if he had to have it) for lunch, and spaghetti, french bread, and caesar salad with croutons for dinner.  He CRAVED the wheat products.  That made me very suspicious, so I started doing more in-depth research.  I didn’t like what I learned.

What did you learn?

I read extensively and asked questions of several knowledgeable, trustworthy people in my world.  All of them pointed me the same direction:  researching the pitfalls of modern wheat.  The more I read, the more I realized that I, too, likely deal with wheat sensitivities.  Migraines.  Skin rash (mine is most likely a type of eczema).  Arthritis-like pain in my thumbs.  Thyroid issues.  Food cravings and weight gain, with ‘normal’ levels of consumption.  A family history of diabetes—type 1 and type 2.  Difficulty sleeping.  Low-grade seasonal depression.  ALL of those can be attributed to wheat consumption.   Armed with the knowledge, we made a decision:  try 30 days of wheat free eating.  Everything with wheat, not just the obvious choices of bread/bagels/pasta.  Everything.

What did we have to lose?

Well, besides 30 days?  Not much.  Except tons of food, I guess.  Cleaning out the pantry and the fridge was an eye opening experience.  I got the boys involved—they each earned $1 for reading labels and sorting items.   In addition to pulling out the cereal and crackers and pasta, we had to pull out almost all salad dressings.  Ketchup.  BBQ sauce.  Any soy based sauce.  Many sodas.  Chips.  Pretzels.  Prepared soups.  Anything with ‘natural flavoring’ or ‘caramel coloring’ on the label, since the assumption has to be that it is from wheat unless specifically marked otherwise.  We were all surprised at the number of things wheat is part of, and we currently have a 25 gallon rubbermaid container filled with the off-limits food.

So…what have you learned?

Lots!  Ryan and I are clearly gluten sensitive.  We learned that in spades early this week when I made pizza for dinner.  I used spelt flour, which is wheat free but not gluten free.  I got up the next day feeling miserable, with a headache that Aleve didn’t touch.  Ryan got up scratching himself fiercely, and one place on his neck was back to bloody.  He’d been itch free for over 2 weeks, and his skin was definitely clearing!  For me, it was a second ‘test’ that I had failed.  We will do some challenge testing on Ryan pretty soon, but I suspect he will have trouble as I have.

Moving forward…?

For me, it’s pretty straightforward.  I’ll avoid wheat and gluten as much as possible.  I don’t need to ever have another migraine, and if no wheat means no migraines, I’m all for it.  Plus, I like sleeping well and feeling great!  It’s really a no-brainer for me.  I’ve also cut back tremendously on other grains (rice, corn, oats, etc) and am totally okay with that.  For the most part I don’t miss it at all, and on the occasional moment I’d like something like that to eat, I remind myself that I’ll feel better without, and that usually takes care of it.  I don’t feel even slightly deprived (chocolate dipped coconut macaroons, anyone??) so I can see eating this way for a  long time.  Ryan’s going to be a harder sell.  He likes the gluten free pasta we’ve found, but he misses his breakfast bagel something fierce.  Today’s project is to make some gluten free bagels for his dining pleasure.  Smile  We’ve found child-acceptable substitutes for many of his favorites already, including pancakes, waffles, and oven pancakes (Dutch babies).  Long term, I know he’ll miss cinnamon rolls and monkey bread, but perhaps by the time fall comes and I bake those again I will have found a recipe or 2 that will work well.  I think, though, that overall he’s going to be willing to stay mostly to totally wheat free because we’re seeing several significant changes for him.  Clearing eczema. No headaches or leg cramps. No stuffy nose.  And the biggie:  growth!  He’s gained nearly 2 pounds and grown just over 1/2” since March 1.  This is a child whose growth has been so slow for the last 7 years we’ve discussed medical tests.  We’re taking the growth as a huge affirmation of this decision.

I hope this helps!  Let me know if I missed anything.  I’m happy to answer whatever questions I can! 

Monday, March 18, 2013

wheat free—halfway through the challenge

18 days since we started our wheat free March.  It’s been fascinating to see the changes.  Ryan no longer scratches to the point of bleeding at night.  He’s falling asleep in 15-20 minutes instead of his normal 60-75 (generally the same bedtime but sometimes earlier!).  He’s down to a very minimal amount of melatonin before bed (recommended by his pediatrician, but now only taking 1/10th the recommended amount) that we’re cutting back more, since it’s mostly a ‘crutch’ instead of a necessity at this point.  He sleeps well and wakes rested.  He’s not dealing with headaches.  Or leg cramps.  Or stomach aches.  Or a continually plugged nose.  He’s been very vigilant about what he eats, and hasn’t grumbled at all.  So far, he’s earned $2 or the $5 promised for completing the month without grumbling.  (Phil 2:14 is the verse we’ve been putting into practice this month).  From his standpoint, going wheat free has been a huge success.

Logan hasn’t been as obvious, but he didn’t have the significant question marks, either.  We are seeing some improvement in his ability to focus and recall.  He still struggles tremendously with academic issues (who wouldn’t, given his laundry list of issues?) but the changes have been helpful.  Always a great sleeper, we’re seeing him fall asleep faster and wake up much less groggy.  For Logan, going wheat free has been a tolerable experience.  Smile  He’s also earned $2 of his promised $5 for not grumbling this month about food. 

Jim hasn’t seen much change, but he’s also eating more wheat than the rest of us, by his choice.  (Maybe I should have promised him $5 too?!?) Not a big deal as far as I’m concerned.  The thing is…he’s likely stuck with the wheat free thing for a long time.  I’ve seen great changes for me:  I sleep SO much better.  I FEEL better.  My headaches are almost completely gone (unless I inadvertently eat some wheat!).  My achy thumbs don’t bother me.  My hip (an ongoing problem since I was about 10) hasn’t bugged me.  I have more energy and less ‘down’ days.  The rainy grey weather hasn’t bugged me at all, and that’s saying something around here! 

So…it looks like wheat-free is going to be much more permanent.  Next steps?  Cut out sugar and most other grains.  But since I love my family, we’ll take it slow.

Monday, March 11, 2013

making progress

It’s not fluent and it’s far from perfect, but we’re thrilled!  (We were told he would be 10 before he could read.)  This pretty much speaks for itself…

Sorry it’s a bit wobbly—it’s hard to hold the camera and do the teaching too!  (Note—there are some sounds Logan simply cannot make due to his hearing loss and apraxia.  “x” is one of them, and he struggles mightily with words like ‘six,’ hence the significant help with that sentence.)

Thursday, March 7, 2013

the things we do for love

like walking in the rain and the snow…

Wait.  That’s not where I intended to go!  Flashback to music from my growing up years.  All that does is prove I’m old.  <sigh>

 

So…the things we do for love.  How about things like a 30 day elimination diet?  For everyone in the house?  Simply because it needs to be tried for one or 2 people?  Yep.  One of those things we do for love.  Smile  Fortunately, it won’t hurt those who don’t need to be on it, so we move forward.  Friday will be 8 days without wheat or wheat products at home, and surprisingly it’s going well.  The boys have been quite agreeable, even double checking to make sure they’re ‘not cheating.’  The best part is that we’re seeing some clearing of eczema already.  Definitely seeing less headaches.  And the child in question is undeniably sleeping better.  And feeling better!   I’m doing ‘experimental baking’ on Wednesdays (when we’re home all day) so that we can figure this wheat-less thing out.  I’m working hard to NOT trade one starchy food for another, so we’re not using the typical wheat free or gluten free all purpose flours that are available.  Makes things slightly more challenging, but it also makes things much healthier!  This week I baked wheat free, high fiber, low(er) carb chocolate zucchini bread, and it was a huge hit.  I took a recipe I have at home and modified it slightly.  Nearly perfect!  I am glad chemistry has always been a favorite subject, since understanding chemistry in the kitchen makes the experimentation a touch easier.

But for this face (hard at work on his math)

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and this one (being a goof at speech therapy)

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going wheat free is something we’ll gladly try (and stay with!) if it makes a difference.  How on earth could we say no?? 

Thursday, January 31, 2013

time crunch!

I’m still here.  There’s a lot on my plate these days, and it seems that I never have enough time to take what’s in my head and get it down here.  We’ve been doing some teaching at church—I taught at Moms N Tots on time management (SUCH fun!!), and Jim and I have been involved in some teaching on Sunday mornings.  We’re involved in a ministry called Young Families, aimed at families with children under 6th grade.  Since we’ve already been there and done that once, we’re sort of the ‘old people mentor types’ in the class.  Young Families has been looking at kids with challenges and life with them.  We shared our experiences on navigating education with a child whose list of challenges/differences reads like a who’s who in the disability world.  Sad smile  BUT…it has helped us refine our thoughts, redefine the WHY of our decisions, and clarify  where we go from here.  God keeps teaching us, and hopefully we keep learning!  Some days I’m WAY too slow to get where He’s leading, but I can see pieces of the bigger picture…more than I could even just 4 months ago.  It’s encouraging.  And when I have (a little more) time, I’ll give the run-down.  In the meantime…

…here’s where some of my time has gone.  My Life in God’s Garden—Musings of a Mom of Many.   Diane is an amazing writer, and her family has been walking an incredible journey.  He faith is SO evident in her blog, and she shares so transparently.  Not just the good stuff…the hard stuff too.  The “I can’t do this any more, except for God” kind of days.  My heart echoes her cry in this post, but she’s so much more eloquent than I.   I have had the briefest glimpse of how she feels here as we have worked to come to terms with Logan’s challenges.    I check her blog almost daily and pray for her family often, even though we’ve never met.  Diane inspires me!  Smile

With that, I need to get moving today.  Since we’ve been in Everett for speech, there’s still lots to accomplish before dinner.

Tuesday, January 22, 2013

challenges

I have 2 challenges for everyone today.  One is fun, and one will be hard.  We’ll start with the fun.  Smile

valentines marriage challenge

Go here and take the 2013 “Be My Valentine” Marriage Challenge.  There are activities for every week between now and Valentine’s Day to make this season extra special for someone you love.  The weekly challenges are fun and will bring some extra spice to your marriage.

And then, when you’re done looking that over, c’mon back.  The second challenge is a bit tougher.  Okay…a LOT tougher.

I want you to go read an incredibly fascinating series of articles about adoption.  Yes, it’s primarily about adoption in and from China, but much of the information is true regardless of where in the world you are talking about orphans.  I know my heart is in turmoil, knowing that we have the resources and the ability to change the world for another child or two, but not necessarily feeling the pull at the moment.  It’s that impossible question:  when you know the RIGHT thing to do but you don’t feel like doing it, is it okay to say ‘no’?  I’m thinking God would have some thoughts on that!  I’m definitely praying here about what we do next.  (No, it’s not likely that we’ll ever be adopting again.  Stranger things have happened, I know, but I would fall over in a dead faint if we moved forward.  We’ll see.  This is when I’m grateful God is in charge, not me.   Smile  )

The articles:

All these articles were written by Amy Eldridge, whose organization (Love without Boundaries) has been involved in orphan care in China for over 10 years.  LWB does incredible work there!! 

Happy reading!  Can’t wait to hear what you think of the challenges. 

Friday, January 18, 2013

well, if you think it will help someone…

This boy:

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rocks!!

Jim and I are teaching in our adult Sunday School class a week from Sunday.  The class is going through a series on living with those who are differently abled and uniquely challenged, and we will be teaching the session on navigating education for your uniquely challenged child.  As we’ve talked through some ideas, I have struggled with how much of what makes Logan uniquely challenged is appropriate to share.  After all, my desire is for him to see himself as ‘normal’ rather than ‘different’ or ‘disabled.’  I don’t want him to use his unique challenges as an excuse or even a crutch.  Yes, he has more challenges in his daily life than most of us, but he’s also got some incredible gifts that most of us don’t possess! 

Anyway, as I was struggling with how much to share, I decided to ask Logan for his input.  It is, after all, HIS story and HIS situation.  So I did.  And man was I blown away by this child’s answer.  He thought for a few minutes, then said, “If you think it will help someone, Momma, then sure.  Tell them whatever you want to about me.  I just want other people to be helped by it.”  My eyes filled with tears at the compassion of this little one.

We talked more when we got home, and it’s clear he truly understands what I am asking.  He knows he doesn’t hear well…and he offered to let us bring his hearing aids to class in case someone needed to see them.  He knows that he isn’t as coordinated as others, but he reminded me that with practice and patience he will eventually learn to do things like ride a bicycle.  He pointed out that already he’s learned so much about his balance and his body placement in space just from being allowed to run and jump and play (and fall down!).  He said that our encouragement to get back up and try again makes it easier.  He knows that he struggles greatly with working memory and inhibitory control and almost all things academic (he’s severely dyslexic).  He is, however, seeing the rewards of patience and time…and he is reading!  He is doing basic math!  He loves that we have the freedom to customize his learning to make it accessible for him, to help him achieve success.  He wants everyone to see the kind of success he’s seeing right now, and if sharing his story and his ‘issues’ helps one family, then he’s all for it. 

I can’t wait to see this boy grow up.  His compassion and desire to make a difference will change his world forever.  Just like he’s changed ours.  And that’s a good thing.  A VERY good thing.  Smile

Sunday, January 6, 2013

prayer needed

Sweet Ivy was adopted from China early in 2012.   She has a complex heart defect and has recently been through a fairly traumatic surgery and recovery period.  After being home for a short period of time, Ivy has had some complications and is back in the hospital.  Things don’t look great from a human perspective at the moment.  Please take a minute and read about sweet Ivy and her family, and pray for them!  Ivy’s blog can be found here.

“Again, I tell you that if two of you on earth agree about anything you ask for, it will be done for you by my Father in heaven. For where two or three come together in my name, there am I with them.”   ~Matthew 18:20

Friday, January 4, 2013

Shout it from the rooftops!!

We are SO excited here!  Today was our first day back at school after a very long break.  (We take time off from Thanksgiving to the New Year, instead focusing on practical applications of our skills.  We use math in budgeting and baking and gift wrapping.  We practice our penmanship in list-making.  We learn about music appreciation and composers when we listen to Handel’s Messiah.  We learn life skills when we learn how to keep our Christmas focus in the right places.  And we enjoy the season with less stress!)  Anyway, today was Logan’s first day ‘back in the saddle’ and to start, we pulled out some slightly more challenging work I’ve been saving for the right time.  Guess what?  He BLEW through it all!  Every single page.  Every single problem!  Every word in the short book I had for him?  HE read them.  By himself.  Alone!  No tears.  No frustration.  No whining.  Just the grins and smiles that come from success, and the spiraling excitement when he realized that he really truly could do this!  Now, he’s not going to win any reading or math awards any time soon.  The book was small—11 pages.  It has 16 different words in it, in 21 sentences.  But he DID it!  For him it’s a HUGE step.  The best part?  He’s so excited by his success that he can’t wait to try the next book.  And the next.  And he’s already talking about how he’s going to do more than I think he can before school’s out this year.  For the kid who has approached every lesson with tears and trepidation, it’s a RED LETTER day.

I know it’s been a long time since I’ve posted, and I apologize.  God has a way of making sure that we truly understand our topic when we are asked to teach.  I am teaching the young moms at church next week, and the topic I was given is time management.  And I have been learning lessons this winter.  Plagued by a mild infection since mid-October, I’ve been under the weather enough to have to evaluate my priorities and understand what’s truly important.  The down time that comes from an ongoing low grade fever and just generally feeling crummy has put significant experience to understanding how those priorities should be ordered.  Fortunately, I am feeling better and am (almost) ready to speak next week.  Even more important, I am grateful for the lessons learned through this and pray that they will stick with me.  Smile

So rejoice with us!  2013 is starting off with a bang.  Great school work.  Mostly restored health for me.  A girl who is excited to head back to WSU tomorrow.  One who leaves Wednesday morning for a semester abroad—in Florence, Italy.  (Such a hard thing for a renaissance era History and Art History major.  We will miss her terribly, but I know when she returns in May she’ll have loads to share.)  One who is back in school, eagerly awaiting her first clinical assignment.  And one who is coming to visit for his little brother’s birthday!  Can’t wait for that…36 hours at Christmas wasn’t long enough to suit this mom.  

I’ll leave you with the words God has given me for this year:

Teach us to number our days aright, that we may gain a heart of wisdom.  ~Psalm 90:12